Research Always Needs Your Help

Email us to join our Public & Patient Involvement Group. Find out how your involvement can make a difference.

Help us decide which questions we should try to answer through research

Tell us what questions you have about vision problems, and help us to design research questions that will help us find the answers.

You can get involved at all stages of the research process – from deciding what needs to be done, right through to helping spread the word about the results.

Work with us to design relevant research projects

Although vision professionals have specialist knowledge, anyone affected by vision problems has expertise of being a ‘patient’ that can help us design relevant research questions.

Help us communicate our research clearly

Sometimes the language researchers use is confusing. For example, “lazy eye” can mean different things to different people, but “anisometropic amblyopia” tells the specialists exactly what type of lazy eye we are talking about.

We’d like to work with you to help ensure we make our research easy to understand for everybody.

Research takes time, but eventually leads to improvements in care

It can take a long time from the time a research question is developed to seeing improvements in clinical care.

There are lots of stages including:

  • Securing research funding
  • Getting ethics committee approval
  • Recruiting staff
  • Designing and setting up experiments
  • Doing the research experiments
  • Analysing data
  • Publishing the results
  • Communicating the results with people

At this point our research starts to make a real difference and influences patient care and clinical guidelines. Your help and input is valuable at almost every stage.

How could you help?

  • Tell us what sort of research would help you
  • Help us design studies that they are relevant, attractive to volunteers and use acceptable methods
  • Help us make grant and ethics committee applications and information material easy to understand
  • Share your specialist skills or knowledge e.g. experience as patient or parent, or links with patient interest groups.
  • Advise us on how to maximise recruitment
  • Participate in our studies/experiments
  • Help us share our findings more widely
  • Give us feedback of your experiences so we can do things better next time

How much time will it take?

You could be involved as much as you like. For example, you could:

  • Read and comment on an information sheet.
  • Become a member of a steering group attending a couple of meetings a year
  • Be a co-applicant on a grant and become part of “the team”

Please email us to get involved. We look forward to working with you!