{"id":4388,"date":"2022-02-03T16:30:47","date_gmt":"2022-02-03T16:30:47","guid":{"rendered":"https:\/\/research.reading.ac.uk\/cinn\/?page_id=4388"},"modified":"2022-12-19T13:25:31","modified_gmt":"2022-12-19T13:25:31","slug":"frequently-asked-questions","status":"publish","type":"page","link":"https:\/\/research.reading.ac.uk\/cinn\/research-studies\/haven\/frequently-asked-questions\/","title":{"rendered":"Frequently Asked Questions"},"content":{"rendered":"<p>[vc_row][vc_column][\/vc_column][\/vc_row][vc_row][vc_column][vc_tta_accordion style=&#8221;modern&#8221; active_section=&#8221;&#8221; no_fill=&#8221;true&#8221; collapsible_all=&#8221;true&#8221;][vc_tta_section title=&#8221;What is the study for?&#8221; tab_id=&#8221;1643905474591-d0d3d89d-d32a&#8221;][vc_column_text]The purpose of this study is to investigate whether the way our blood naturally clots can affect the health of the blood vessels around the body and in the brain, and how this relates to our cognitive function in older life.<\/p>\n<div class=\"\" data-mesh-id=\"comp-kkim3rif1inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkim3rif1inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div data-testid=\"richTextElement\">Previous research has shown that cardiovascular health conditions (like high blood pressure, heart disease, and diabetes) are linked to brain health and cognitive function in older adults. There is some evidence that certain regions of the brain that are involved in memory may be particularly affected. However, we do not yet know exactly how blood vessel health can affect the brain. In particular, we don\u2019t know whether overall cardiovascular health affects only the blood vessels in the brain, the brain cells, or the ability for blood vessels and brain cells to work together in a co-ordinated way.<\/div>\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<p><span class=\"color_15\">This research study will investigate these relationships. One of our goals is to see if there are substances in the blood that can help to identify and protect individuals at risk of developing brain health problems in later life.<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Who can take part?&#8221; tab_id=&#8221;1643909129976-cbeaca31-3d7d&#8221;][vc_column_text]<span class=\"color_11\">You are eligible to take part in this study if you are o<\/span>ver 50 years of age.<\/p>\n<p>You are NOT eligible to take part in this study if you have any of the following:\u200b<\/p>\n<div class=\"\" data-mesh-id=\"comp-kkim3rif1inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkim3rif1inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div id=\"comp-kkijxwul\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<ul>\n<li class=\"font_9\"><span class=\"color_11\">Any clinically diagnosed psychiatric or neurological conditions (e.g. schizophrenia, depression, autism, etc)<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_11\">Diagnosed cardiovascular disease, diabetes, liver disease, or hypertension<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_11\">Diagnosed bleeding disorder (e.g. platelet function defects, haemophilia)<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_11\">Any metal implanted in your body<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_11\">Currently take anticoagulant or antiplatelet medication (e.g. clopidigrel, ticagrelor, warfarin, rivoroxaban)<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_11\">Suffer from claustrophobia (the brain scanner is an enclosed space)<\/span><\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Do I have to take part?&#8221; tab_id=&#8221;1643909301060-7e48a4b3-4515&#8243;][vc_column_text]If you choose to participate you will need to sign a consent form. After signing the consent form you are still free to withdraw from the study at any time. You will not need to give a reason why, and it will not affect your relationship with the University of Reading or any of the researchers involved in the study.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;What will I have to do if I take part?&#8221; tab_id=&#8221;1643909345204-400837c1-3dc7&#8243;][vc_column_text]<span class=\"color_15\">Participation in the study will require you to visit the University of Reading for approximately 4.5 hours.<\/span><span class=\"color_15\"><span class=\"wixGuard\">\u200b<\/span><\/span><span class=\"color_15\">Information about each of the procedures in the study is provided\u00a0<a href=\"https:\/\/research.reading.ac.uk\/cinn\/join-the-haven-study\">here<\/a>.<\/span>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Will I be paid for my time?&#8221; tab_id=&#8221;1643909387047-3b402c22-965f&#8221;][vc_column_text]You will receive \u00a340 for your time and contribution to the research.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;What are the benefits of taking part?&#8221; tab_id=&#8221;1643909419809-fb6915b7-ac52&#8243;][vc_column_text]<\/p>\n<div class=\"sow-accordion-panel sow-accordion-panel-open\" data-anchor=\"what-are-the-benefits-of-taking-part\">\n<div id=\"accordion-content-what-are-the-benefits-of-taking-part\" class=\"sow-accordion-panel-content\" role=\"region\" aria-labelledby=\"accordion-label-what-are-the-benefits-of-taking-part\">\n<div class=\"sow-accordion-panel-border\">\n<div id=\"comp-kltoksxk\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">Participation of the current study will enable you to:<\/div>\n<div id=\"comp-kkilmu0s3\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<ul>\n<li class=\"font_9\"><span class=\"color_15\">Obtain an image of your brain<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_15\">Obtain information about your body and health<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_15\">Experience what it is like to participate in a laboratory testing environment<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_15\">Contribute to scientific research into body and brain health as we age<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_15\">Contribute to the training of student researchers who are collaborating on the study<\/span><\/li>\n<\/ul>\n<p><span class=\"wixGuard\">\u200b<\/span><span class=\"color_15\">Participation in this research will have no direct health benefits for you. None of the tests or procedures in the study can be used for the purposes of diagnosing or managing illness.<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"sow-accordion-panel\" data-anchor=\"what-are-the-risks-of-taking-part\">\n<div class=\"sow-accordion-panel-header-container\" role=\"heading\">\n<div id=\"accordion-label-what-are-the-risks-of-taking-part\" class=\"sow-accordion-panel-header\" role=\"button\"><\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;What are the risks of taking part?&#8221; tab_id=&#8221;1643909504733-64b1aacf-1dd0&#8243;][vc_column_text]<\/p>\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\"><span class=\"color_15\">There are some risks associated with participating in this study. These risks are:<\/span><\/div>\n<div data-testid=\"richTextElement\"><\/div>\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div id=\"bgLayers_comp-kkilpgne\" class=\"_3_wbk\"><strong>Common\u00a0<\/strong>(about 25% chance)<\/div>\n<div class=\"\" data-mesh-id=\"comp-kkilpgneinlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilpgneinlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilpgnh\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<ul>\n<li class=\"font_9\"><strong><span class=\"color_11\">Blood vessel function test \u2013 Redness or itching<br \/>\n<\/span><\/strong><span class=\"color_11\">During this technique, a weak electrical current will deliver drugs to your skin blood vessels.\u00a0 This non-invasive technique is safe, but sometimes causes brief redness or itching\u00a0which will go away within 20\u201330 minutes after the procedure.<\/span><\/li>\n<\/ul>\n<div id=\"bgLayers_comp-kkilr4g22\" class=\"_3_wbk\"><strong>Less Common\u00a0<\/strong>(less than 10% chance)<strong><br \/>\n<\/strong><\/div>\n<div class=\"\" data-mesh-id=\"comp-kkilr4g22inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilr4g22inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilr4g25\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<ul>\n<li class=\"font_9\"><strong><span class=\"color_15\">Blood sample \u2013 bruising<br \/>\n<\/span><\/strong><span class=\"color_15\">There is a chance (about 1 in 50) that venous blood sampling may leave a bruise on your arm. The risk of this will be minimised because the researcher taking your blood will be trained and experienced.<\/span><\/li>\n<\/ul>\n<p><strong><span class=\"color_15\">Rare\u00a0<\/span><\/strong>(less than 1% chance)<\/p>\n<div class=\"\" data-mesh-id=\"comp-kkils1z12inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkils1z12inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkils1z15\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<ul>\n<li class=\"font_9\"><strong><span class=\"color_15\">Brain scan \u2013 breathing higher-than-normal levels of carbon dioxide<br \/>\n<\/span><\/strong><span class=\"color_15\">This can result in short-term and mild side effects. These include nausea, flushing, hyperventilation (breathing faster than normal), anxiety, sensory stimulation, and feelings of panic. To reduce these risks, trained staff will monitor you for these symptoms before, during, and after this test, and will stop the test if you begin to experience any of these symptoms.<\/span><\/li>\n<li class=\"font_9\"><span class=\"color_15\"><span class=\"wixGuard\">\u200b<\/span><\/span><strong><span class=\"color_15\">Brain scan \u2013 claustrophobia<br \/>\n<\/span><\/strong><span class=\"color_15\">The MRI scanner is a confined space, and it is possible you may suffer psychological stress, anxiety, or claustrophobia. The risk is expected to be 1 in 200 (0.5%). If you know you suffer from claustrophobia we will not complete an MRI scan on you. Whilst you are in the scanner, we will provide you with a panic button which you can press to stop the scan at any time. There is more information about what it is like to have an MRI scan in the MRI Participant Information Sheet which you have received alongside this information.<\/span><\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;How will you use my data?&#8221; tab_id=&#8221;1643909557809-b8bb4ddf-f89e&#8221;][vc_column_text]<\/p>\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkilpgneinlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilpgneinlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilpgnh\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkilr4g22inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilr4g22inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilr4g25\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkils1z12inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkils1z12inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div data-testid=\"richTextElement\">All information collected about you in the course of this study will be kept strictly confidential. It will not be possible to identify your from data that may be shared with the scientific community, or that may be included in any report or publication of the study.<\/div>\n<div data-testid=\"richTextElement\"><\/div>\n<div data-testid=\"richTextElement\">The organisation responsible for protection of your personal information is the University of Reading (the Data Controller). Queries regarding data protection and your rights should be directed to the University Data Protection Officer at\u00a0<a href=\"mailto:imps@reading.ac.uk\">imps@reading.ac.uk<\/a>, or in writing to: University of Reading, Information Management &amp; Policy Services, Whiteknights House, Pepper Lane, Whiteknights, Reading, RG6 6UR, UK.<\/div>\n<div data-testid=\"richTextElement\"><\/div>\n<div data-testid=\"richTextElement\">The University of Reading collects, analyses, uses, shares and retains personal data for the purposes of research in the public interest. Under data protection law we are required to inform you that this use of the personal data we may hold about you is on the lawful basis of being a public task in the public interest and where it is necessary for scientific or historical research purposes. If you withdraw from a research study which processes your personal data, dependent on the stage of withdrawal, we may still rely on this lawful basis to continue using your data if your withdrawal would be of significant detriment to the research study aims. We will always have in place appropriate safeguards to protect your personal data.<\/div>\n<div data-testid=\"richTextElement\"><\/div>\n<div data-testid=\"richTextElement\">If we have included any additional requests for use of your data, for example adding you to a registration list for the purposes of inviting you to take part in future studies, this will be done only with your consent where you have provided it to us and should you wish to be removed from the register at a later date, you should contact Dr Gabriella Rossetti at\u00a0<a href=\"mailto:g.m.rossetti@reading.ac.uk\">g.m.rossetti@reading.ac.uk<\/a>.\u200bYou have certain rights under data protection law which are:<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkilpgneinlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilpgneinlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilpgnh\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkilr4g22inlineContent\" data-testid=\"inline-content\">\n<div data-mesh-id=\"comp-kkilr4g22inlineContent-gridContainer\" data-testid=\"mesh-container-content\">\n<div id=\"comp-kkilr4g25\" class=\"_1Z_nJ\" data-testid=\"richTextElement\">\n<div class=\"\" data-mesh-id=\"comp-kkils1z12inlineContent\" data-testid=\"inline-content\">\n<ul>\n<li>Withdraw your consent, for example if you opted in to be added to a participant register<\/li>\n<li>Access your personal data or ask for a copy<\/li>\n<li>Rectify inaccuracies in personal data that we hold about you<\/li>\n<li>Be forgotten, that is your details to be removed from systems that we use to process your personal data<\/li>\n<li>Restrict uses of your data<\/li>\n<li>Object to uses of your data, for example retention after you have withdrawn from a study<\/li>\n<\/ul>\n<p>Some restrictions apply to the above rights where data is collected and used for research purposes. You can find out more about your rights on the website of the Information Commissioners Office (ICO) at\u00a0<a href=\"https:\/\/ico.org.uk\/\">https:\/\/ico.org.uk\u00a0<\/a><\/p>\n<p>Your personal data and consent form will be kept for 5 years before being destroyed.You also have a right to complain the ICO if you are unhappy with how your data has been handled. Please contact the University Data Protection Officer in the first instance.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;What if I change my mind about taking part?&#8221; tab_id=&#8221;1643909611700-9a5577b7-21f0&#8243;][vc_column_text]<\/p>\n<div id=\"bgMedia_comp-kkimi6j33\" class=\"_33YMf\">If for any reason you wish to withdraw from this study, you are free to do so at any point (even during a laboratory test) without giving a reason, and no pressure will be put on you to remain in the study.<\/div>\n<div><\/div>\n<div class=\"_33YMf\">If for any reason you lose the ability to consent to the research during the programme, then you would be withdrawn from the study. Identifiable data already collected with consent would be retained and used for scientific study, but no further data would be collected.<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Who is the study run by?&#8221; tab_id=&#8221;1643909651353-c272b2d6-7398&#8243;][vc_column_text]<\/p>\n<div>This study is being jointly run by CINN and ICMR. It has been reviewed and approved by the University of Reading University Research Ethics Committee.<\/div>\n<div><\/div>\n<div><strong>Centre for Integrative Neuroscience and Neurodynamics (CINN)<\/strong><br \/>\nResearch at the Centre for Integrative Neuroscience and Neurodynamics (CINN) investigates the dynamical interactions that bring about human thought and behaviour \u2013 from the fast neural timescale of a few milliseconds, to the slow timescale of life-span development.<\/div>\n<div>\n<div data-testid=\"richTextElement\"><\/div>\n<div id=\"comp-kkmi58kd9\" class=\"_1Z_nJ\" data-testid=\"richTextElement\"><span class=\"color_32\"><strong>Institute for Cardiovascular and Metabolic Research (ICMR)<\/strong><br \/>\n<\/span>The Institute for Cardiovascular and Metabolic Research (ICMR) is a multidisciplinary centre that brings together scientists from a wide range of research fields to work to understand the development of cardiovascular diseases, and the underlying obesity-related metabolic diseases from which they develop.\u00a0<span class=\"pWNha\">Visit the ICMR website here.<\/span><\/div>\n<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Who has approved the study?&#8221; tab_id=&#8221;1643909690858-bb832afe-4410&#8243;][vc_column_text]This study has been reviewed by the University of Reading University Research Ethics Committee (UREC) and given a favourable opinion for conduct.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;What if new information becomes available?&#8221; tab_id=&#8221;1643909724389-8eedd24e-c5da&#8221;][vc_column_text]If new information becomes available that might influence your decision to be in the study you will be provided a new Participant Information Sheet explain it, and if you still want to take part you will be asked to sign a new consent form.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Who do I contact for more information or if I have any questions?&#8221; tab_id=&#8221;1643909752975-ed2d363a-3c73&#8243;][vc_column_text]For more information or if you have any questions, please contact the study team at <a href=\"mailto:haven.study@reading.ac.uk\">haven.study@reading.ac.uk<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Who do I contact if I have a complaint?&#8221; tab_id=&#8221;1643909787437-76924f5a-0f3b&#8221;][vc_column_text]<\/p>\n<div class=\"_3_wbk\">If you have any complaints or comments regarding the study, you can contact the study principal investigator Professor Anastasia Christakou by email at\u00a0<a href=\"mailto:a.christakou@reading.ac.uk\" data-auto-recognition=\"true\">a.christakou@reading.ac.uk<\/a><\/div>\n<div><\/div>\n<div class=\"_3_wbk\">Complaints or comments can be made at any stage of your participation in the study.<\/div>\n<p>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;Section&#8221; tab_id=&#8221;1645797304073-a56a2ade-c132&#8243;][\/vc_tta_section][\/vc_tta_accordion][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][\/vc_column][\/vc_row][vc_row][vc_column][vc_tta_accordion style=&#8221;modern&#8221; active_section=&#8221;&#8221; no_fill=&#8221;true&#8221; collapsible_all=&#8221;true&#8221;][vc_tta_section title=&#8221;What is the study for?&#8221; tab_id=&#8221;1643905474591-d0d3d89d-d32a&#8221;][vc_column_text]The purpose of this study is to investigate whether the way our blood naturally clots can affect the health of&#8230;<a class=\"read-more\" href=\"&#104;&#116;&#116;&#112;&#115;&#58;&#47;&#47;&#114;&#101;&#115;&#101;&#97;&#114;&#99;&#104;&#46;&#114;&#101;&#97;&#100;&#105;&#110;&#103;&#46;&#97;&#99;&#46;&#117;&#107;&#47;&#99;&#105;&#110;&#110;&#47;&#114;&#101;&#115;&#101;&#97;&#114;&#99;&#104;&#45;&#115;&#116;&#117;&#100;&#105;&#101;&#115;&#47;&#104;&#97;&#118;&#101;&#110;&#47;&#102;&#114;&#101;&#113;&#117;&#101;&#110;&#116;&#108;&#121;&#45;&#97;&#115;&#107;&#101;&#100;&#45;&#113;&#117;&#101;&#115;&#116;&#105;&#111;&#110;&#115;&#47;\">Read More ><\/a><\/p>\n","protected":false},"author":469,"featured_media":3836,"parent":2726,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"__cvm_playback_settings":[],"__cvm_video_id":"","footnotes":""},"class_list":["post-4388","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"aioseo_notices":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.8.1 - 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