We are pleased to share that some of our survey findings have now been published!
We found that just under half reported a neutral impact and 16% reported a positive impact. Just over a third reported a negative impact. Those who were younger in age, had a progressive diagnosis and have psychological symptoms were more likely to report a negative impact. We also found that levels of MS related concern were highest amongst those who reported a negative impact.
What was particularly interesting, and what we feel will be valuable for supporting the MS community moving forward, is that coping methods seemed to be related to the level of COVID-19 impact also. Specifically, what differentiated those who reported a negative impact compared to those who reported a neutral or positive impact was the use helpful coping methods, namely active problem focused approaches such as using the extra time to engage actively in self care, be productive with family and engage more in existing or even new hobbies. We believe that understanding what is working well for those who are doing well at this time could be used to advocate for additional support for those who are more vulnerable to the negative impact of the current pandemic.
The full article is available here: The COVID-19 pandemic experience in Multiple Sclerosis: The good, the bad and the neutral
In the meantime, we still continue to invite people to take part in our survey on psychological support in Multiple Sclerosis here
Multiple Sclerosis (MS) is a neurological condition that affects approximately 2.3 million people globally. Due to the nature of the condition and the symptoms, people with MS experience psychological difficulties at a disproportionately higher rate than the general population. Different types of support options may be available to different people, and this may or may not always be accessible or suitable to the needs of people with MS.
Our research aims to develop a psychological intervention that is tailored for the MS community.
To do this, we would first like to ask people living with MS about their (positive and negative) experiences of accessing support, and their opinions about what kind of support would be useful. We will use this information to design a psychological intervention that will reflect the views of the MS commmunity.
We invite you to partner with us in this endeavour.
Please click on the START button below to share your experiences and views with us.
If the above button doesn’t work, please click here: https://forms.gle/5YTssp4pDVFciYEe9
The Psychologist (BPS). Psychological support in Multiple Sclerosis
MS-UK. New pathways magazine
The power of acceptance (pdf)
National Multiple Sclerosis Society How my MS diagnosis inspired my career
MS-UK How do you cope with MS?
Overcoming Multiple Sclerosis Finding certainty in uncertainty
Overcoming Multiple Sclerosis The importance of reducing stress
MSTrust – How my MS experience shaped my career
Overcoming Multiple Sclerosis/OMS – Why I decided to research psychological treatments to suit people with MS
The MS show – Multiple Sclerosis – Emotions loss